- The govt has released the National draft policy on Rare Diseasein which financial support of 15 lakh will be provided under the Rashtriya Arogaya Nidhi scheme for one-time treatment of rare diseases.
- Beneficiaries:The scheme benefit is limited to people below Poverty Line (BPL) and also 40% of the population eligible as per Ayushman Bharat-Pradhan Mantri Jan Arogya Yojana (AB-PMJAY) norms for treatment in government tertiary hospitals only.
National Policy for Treatment of Rare Diseases (NPTRD):
- Previously the health ministry formulated the National Policy for Treatment of Rare Diseases (NPTRD) in July, 2017. When this policy was introduced, there prevailed lack of clarity regarding the cost effectiveness, share of expenditure between centre and states etc. Hence the policy was decided to be reframed & the ministry constituted an expert committee in November 2018 to review it.